I did not realize what was going on with me until about 5 days ago. I am not affected by them Opioid Crisis at all even though I do take pain medication. My doctor warned me ahead of time thankfully. I started weening off all pills because of the thought of addiction or a better term for it, dependence. I don’t want to need to take a pill to feel better every single time I am in pain or stiff or etc. As you get order, those pills will eat the lining of your stomach. I have been on some sort of pain medication since I was 12 taking Naproxen. Since 2009, I have been very careful with the amount of medication I take. Mainly because I have a child and need to stay alert when she is under my care.
Dystonia makes you feel old before your time and the treatment can sometimes be 11 to 12 pills a day or more. At some point I had too much medication. And I needed to take most of it to function. Times are different now. Now I have the Marijuana Card or license back, I need less pills. The bad news is that I am purposely weening myself off all these pills. But I am suffering from withdrawal. It is not bad and I had it worse when I was dependant on Klonopin. I had constant migraines. I would have to take a pill just to get some relief. This time I don’t know what pills are causing the withdrawal. It feels like I need something like a cigar, but I don’t. I am a bit jittery but I am not twitching or shaking too much in the day time. At night I am jerking and waking myself up out of my sleep.
I am micro dosing the Marijuana to get me through the day with the least amount of pills as possible. The withdrawal syptoms would be really hard to deal with if I wasn’t able to get the Medical Marijuana. The nausea and vomiting is withdrawal too. That was the warning sign and also a good sign. I am getting this medicine out of my system slowly. If I do it too fast, I wouldn’t be able to afford to smoke my medicine because I would need more. Luckily the growers are trying to help me and cutting me some deals at the shop. They noticed how I was walking and could immediately tell it was my ankles now. I am going to get my compression stockings today or tomorrow and also that blood pressure monitor. I also need to put the prescription in for the water pills because we do know that I am retaining water for sure. What we don’t know yet is the reason why and I don’t think the x-rays will give us the answer although I am still going to have them done.
With this pen and a little strain mixing, I am able to function well through the day with some pain. The pain would be worse if I didn’t vape or smoke something. It is an article out about how dangerous it is to vape oil because of the tar. Tar? It also says that we as consumers do not know what is in the oil. Why we don’t? I know who it came from. A grower who sells to the shop and the shop sells very good oil. It has been tested and they can explain to you what is in it. People are laughing at the article but it does show how ignorant some people can be. I would be more concerned with the Marijuana itself and how it was grown since I am putting it in my body. All my doctor’s support it but one. The pain management doctor who comes to the house. The bottom line is that I look and feel much more alert and functional in the morning especially.
I have been able to get up with my daughter every day before she goes to school. The withdrawal she can not tell. It is not noticable. I can do her hair on one day and mine on the next. I have been doing %80 of everything from my bed because of the swelling. Right now it is my feet. They are puffy. My daughter knows I have to rest a lot and she also knows that my eye swelling up is worse than my ankles. She knows how it feels because it happened to her once and we do not know the exact cause. We do know it was her allergies and she needed to go to the ER. I just use a hot towel but would be so embarrassed if I had to go to work with my eye almost swollen closed. It affects your vision. And I have a droopy eye already that they wanted to do surgery on. I am able to keep my daughter while he is away handling business which I am proud of. I do not want to be absent during the important parts of her life. I haven’t took anymore pictures yet but I got the camera on the phone working better.
I will be adding more pictures to this blog soon. Not of me but of the products we use for our hair and other products I love. The movie section is empty for a reason. I haven’t watched a movie in some time. I have been reading more and playing the game. I still haven’t been able to play Destiny 2 that much. I always choose to play Mortal Kombat XL because I am getting better at it. I am finally used to wearing my glasses now. I usually don’t wear them in the house but I need to start trying more. I need to get up and put them on first. The Dystonia spread to my eyes years ago. My eyes are very sensitive to light. Even the TV and the phones. All the things that we use. I adjusted my devices that I own to my vision needs. The televisions in here are adjusted with more brightness so to watch certain movies, I need to wear the glasses to be on the safe side and for when I am playing the game too. I suffer from eye fatigue. Fatigue period. I can get through the withdrawal syptoms with this vape pen and a few other items that I am going to get. Cleaning my system out at this exact time if very important. At times, I clean all the Marijuana from my system to lower my tolerance. This way, I don’t get burnt out on cannabis.
This game is hard but I am learning how to play it. I liked this video. It’s a lot you need to know about this game. And it’s a fun game to play if you don’t mind playing without being able to save gameplay for a while. This game should be a bit cheaper now. It’s not new at all. One of the newer games we own. I will add to the list of games soon. My phone is killing me draining so fast.
I have been trying to raise Dystonia Awareness but most people are not really interested in learning what it is and how it would affect their health. How many people see the word Dystonia and actually look up the meaning or wonder what it is. Most doctors can not diagnose it and you end up being diagnosed with other illnesses by mistake. I was diagnosed with MS which everyone has heard of but even I can’t remember how to spell it. Probably because I took the shots to treat it for two years and was then told by the Neurologist at the time that I didn’t have it. 7 years later, I am diagnosed with Myoclonic Dystonia and Occasional Tremors. Makes good sense to me. I have less control of my muscles than I did 10 years ago which means whatever I have is progressing along very slow.
I decided not to go to the Urgent Care because of the weather and my ride simply didn’t want to drive in this snow just so they could tell me the same thing the doctor said. Rest and elevate my feet. Watch what I eat and go light on the salt. I am not monitoring my blood pressure yet and I haven’t started any new medications. The soaking brought the swelling down a lot plus not being on my feet today or yesterday. I am not really even supposed to be sitting here typing this because the swelling can be caused by sitting to long. As far as Dystonia Awareness goes, I am raising a bit of awareness everyday but I do take a break from all the medical problems to focus on other things. Like raising my child and keeping our appearances up to the best of my ability.
I am using the laptop right now because he is gone and I only needed to use it for a hour before I play Mortal Kombat XL. I can prop myself up in the bed to play. It is cold with fresh snow on the ground. I don’t have to go to another appointment until Friday so it gives me plenty of time to rest, soak, and elevate through out each day and maybe by the time of my appointment, I can get my feet in them boots. I am the type of person who exercises by doing the stairs all day and I still am but not as much as normal and I am using half my speed making sure that I don’t step the wrong way and fall on the stairs again. I fell and twisted my ankle on the stairs last year and that hurt more than this does. This is more of an uncomfortable feeling and they seem to leave stuff in the walk ways as if they don’t remember that I can trip over it.
I am not focusing on the Dystonia right now because of the constant swelling in my feet, ankles, and part of my legs. It only really hurts when I try to bend the ankles or someone steps on my foot. There is no more swelling anywhere. Not even in my eyes right now. The marijuana helps with the pain and also helps with sleep. Some types work better than others. I am currently using THC instead of CBD for now and I am still using my pipe to smoke it. Such an easy way to do it and helps me dose myself. I am not really a recreational smoker or social. I am learning but I am aware that if it is not grown right or they use chemicals on it, it could have a negative affect on my muscles. It has happened in the past before I started to go get everything from a grower or the dispensary.
Nothing from that dispensary taste good or like it should but they keep the prices low since they are in the neighborhood. I am going somewhere else with better quality than them soon. I am also looking for something to help me sleep or relax the muscles. No more attacks since my last post about them which means that the cannabis is working. If I do have another attack, I know I don’t have to travel far for relief and on a good day, I can go a little bit father away to get better quality. And better tasting clean smoking marijuana. You can not imagine how many people try to sell me something through Twitter but they don’t have real pictures. If I was and I am going to sell something like that to anyone, I would definitely have a picture that is current and that I just didn’t do a Google search to find an image off it to trick someone into buying. So called weed men on Twitter seem to not understand this and they just grab an image off Google and DM you that waste of time picture that I can download myself. I sure hope when doing business on Twitter of this nature that you are being careful because these people are only out to get your money and once they get it, all you can do is complain. After all, they are not really using their real name. Some don’t even have enough sense to hold a conversation with a potential client but they love to spit that game like they can suck the credit card number out your pocket. I just have learned to ignore those DM’s now.
The laptop is more fun to use because of the keyboard. I can also see a lot better what I am typing on here than the new tablet. That AT&T Primetime tablet is really nice. Especially since it was free and you only have to pay $10 a month to have one of your own. It has the speakers on the front instead of the back which is a plus and it takes amazing pictures. The battery life is good fresh out the box and all you do is sign in to your Google account to get all your apps on the new device and then connect it to or discover other devices. It was an easy set up. It came by delivery in a timely manner. I have switched from the laptop to the tablet but I am able to continue where I left off. The prediction of the next word you might type is good and it has auto correct already on it. There really isn’t much that I had to do to set it up and I was able to turn the tablet into a phone just by following the very simple instructions on the screen. I fixed the settings for the keyboard and found what I was looking for. I wish this tablet would automatically put a period at the end of a sentence but my phone can’t even do that. I am using G Board by Google. You can really customize the way it looks and feels when you type. 👍
Something my daughter would like for her Nintendo Switch. Looks fun. https://youtu.be/UAO2urG23S4