I need what?

The doctor told me to use rice in a sock for heat compressions on my ankles. That sounds smart. The swelling has almost completely gone from me just getting some rest but the left over pain is hard to deal with. I also have to limit my salt and switch blood pressure meds to one that is both a water pill and a blood pressure medication. I need compression stockings as well. She ordered X-rays because the pain is mainly in the ankle bones and they should not be so tender to the touch. I am really glad I went to see her even though she is allergic to smoke and was just recovering from an asthma attack which kept her from working for 4 days. I didn’t know her allergies were that bad so I smoked before I went to see her and she was suffering. Like she was in a room full of smoke but nobody was smoking. I made a joke about it but it really wasn’t funny at all. I can’t really vape or smoke before I go see her because watching her cough like that reminded me of my perfume allergy.

The whole bed rest thing is not fully necessary. I need to limit my activity’s if I notice the swelling coming back. My ankle was swollen back up just from going to the appointment in the first place. I was able to get the boots on but it was hard. Luckily these boots are comfortable. It is a lot of snow expected throughout the week. I need to set up all the test that she wants me to have done. She is a pretty good doctor and so far I like going to see her and it is not that far from my house like some of the other doctors I go to.

I have been catching up on Altered Carbon. I decided not to binge watch it. I kept falling asleep on the talking parts and missing all the action. I have made it half way through the season but my daughters’ father won’t let me watch them without him so I would have watched more. It was getting really good. I haven’t been able to play the game because he is still playing Nioh which is just simply to hard for us to play. Me and my daughter tried to take turns from the beginning but we couldn’t get out the building where you start at. It took him two days just to beat one boss.

Our hair is done for now. I will re braid my hair ASAP and put some oil on my hair and scalp. It will be dry in a few days. I have just been adding a little oil to all the dry looking areas. I need to oil my entire scalp next time. It doesn’t look dingy for now which means the plan worked and so did the products I use. My daughter needs Moisturizer every day no matter what I use on her hair. I just re braided hers. Now it looks dry again. Maybe I need a different product. We will see. All it needs is to be moisturized and combed daily since she has that high pony still. She doesn’t like me to comb her hair but her hair dresser is busy and the other one moved. So I have been doing her hair since then.

This vape pen is perfect for me. Of course I got a cheaper one since it was my first time vaping. He says I spent too much only because he don’t vape. The dispensary had old stuff the first time and it was kinda dry. The next time they had better quality. We were running through it because it wasn’t that potent in the first place. That may be why they had it on sale. I will find out when they are getting some more in that is fresh and see if it works better and taste like it is supposed to. Using the pen right now to try to loosen the muscles and dull some of the pain, plus I am doing the stairs. I needed to do some ankle stretches before I got started. I didn’t do too many because I didn’t want to make things worse. I am feeling better today and I slept well. Time for breakfast.

 

 

Raising Awareness?

I have been trying to raise Dystonia Awareness but most people are not really interested in learning what it is and how it would affect their health. How many people see the word Dystonia and actually look up the meaning or wonder what it is. Most doctors can not diagnose it and you end up being diagnosed with other illnesses by mistake. I was diagnosed with MS which everyone has heard of but even I can’t remember how to spell it. Probably because I took the shots to treat it for two years and was then told by the Neurologist at the time that I didn’t have it. 7 years later, I am diagnosed with Myoclonic Dystonia and Occasional Tremors. Makes good sense to me. I have less control of my muscles than I did 10 years ago which means whatever I have is progressing along very slow.

I decided not to go to the Urgent Care because of the weather and my ride simply didn’t want to drive in this snow just so they could tell me the same thing the doctor said. Rest and elevate my feet. Watch what I eat and go light on the salt. I am not monitoring my blood pressure yet and I haven’t started any new medications. The soaking brought the swelling down a lot plus not being on my feet today or yesterday. I am not really even supposed to be sitting here typing this because the swelling can be caused by sitting to long. As far as Dystonia Awareness goes, I am raising a bit of awareness everyday but I do take a break from all the medical problems to focus on other things. Like raising my child and keeping our appearances up to the best of my ability.

I am using the laptop right now because he is gone and I only needed to use it for a hour before I play Mortal Kombat XL. I can prop myself up in the bed to play. It is cold with fresh snow on the ground. I don’t have to go to another appointment until Friday so it gives me plenty of time to rest, soak, and elevate through out each day and maybe by the time of my appointment, I can get my feet in them boots. I am the type of person who exercises by doing the stairs all day and I still am but not as much as normal and I am using half my speed making sure that I don’t step the wrong way and fall on the stairs again. I fell and twisted my ankle on the stairs last year and that hurt more than this does. This is more of an uncomfortable feeling and they seem to leave stuff in the walk ways as if they don’t remember that I can trip over it.

I am not focusing on the Dystonia right now because of the constant swelling in my feet, ankles, and part of my legs. It only really hurts when I try to bend the ankles or someone steps on my foot. There is no more swelling anywhere. Not even in my eyes right now. The marijuana helps with the pain and also helps with sleep. Some types work better than others. I am currently using THC instead of CBD for now and I am still using my pipe to smoke it. Such an easy way to do it and helps me dose myself. I am not really a recreational smoker or social. I am learning but I am aware that if it is not grown right or they use chemicals on it, it could have a negative affect on my muscles. It has happened in the past before I started to go get everything from a grower or the dispensary.

Nothing from that dispensary taste good or like it should but they keep the prices low since they are in the neighborhood. I am going somewhere else with better quality than them soon. I am also looking for something to help me sleep or relax the muscles. No more attacks since my last post about them which means that the cannabis is working. If I do have another attack, I know I don’t have to travel far for relief and on a good day, I can go a little bit father away to get better quality. And better tasting clean smoking marijuana. You can not imagine how many people try to sell me something through Twitter but they don’t have real pictures. If I was and I am going to sell something like that to anyone, I would definitely have a picture that is current and that I just didn’t do a Google search to find an image off it to trick someone into buying. So called weed men on Twitter seem to not understand this and they just grab an image off Google and DM you that waste of time picture that I can download myself. I sure hope when doing business on Twitter of this nature that you are being careful because these people are only out to get your money and once they get it, all you can do is complain. After all, they are not really using their real name. Some don’t even have enough sense to hold a conversation with a potential client but they love to spit that game like they can suck the credit card number out your pocket. I just have learned to ignore those DM’s now.

The laptop is more fun to use because of the keyboard. I can also see a lot better what I am typing on here than the new tablet. That AT&T Primetime tablet is really nice. Especially since it was free and you only have to pay $10 a month to have one of your own. It has the speakers on the front instead of the back which is a plus and it takes amazing pictures. The battery life is good fresh out the box and all you do is sign in to your Google account to get all your apps on the new device and then connect it to or discover other devices. It was an easy set up. It came by delivery in a timely manner. I have switched from the laptop to the tablet but I am able to continue where I left off. The prediction of the next word you might type is good and it has auto correct already on it. There really isn’t much that I had to do to set it up and I was able to turn the tablet into a phone just by following the very simple instructions on the screen. I fixed the settings for the keyboard and found what I was looking for. I wish this tablet would automatically put a period at the end of a sentence but my phone can’t even do that. I am using G Board by Google. You can really customize the way it looks and feels when you type. 👍

Good Morning

I can’t take it anymore. I need to go to the Urgent Care and have them look at my feet and ankles. The swelling is worse than it was. The picture was just me playing with the camera on this ATT Primetime tablet. It takes great pictures and I like it so far. When you just basically on bed rest, you find things to do while in the bed. Of course you can watch movies and use your devices but you can’t sit or stand too long. Walking is even worse and I may not be able to put my boots on and go out in the snow.

I don’t know how much snow we have because I was resting all day yesterday. I had an appointment with the doctor but she was sick. I have to reschedule but I need medical evaluation right now. I am not scared but do wonder all day long what the cause of the swelling is. Rather than laying around and resting all day, I need to go see about my feet. They feel almost numb. I soaked them in hot water this morning really early and put some Peppermint oil on my feet and ankles. They feel better right now but you can’t deny something is wrong.
There are a lot of post here but like I said, trying to keep new content is easier if you schedule your post. I can even schedule a good morning post to Twitter everyday. I haven’t really been able to change all the settings on this tablet yet. I was so tired that when it arrived, they opened it and took a peek. I was sleeping so well again that they tried not to disturb me. This swelling got worse again when I braided my hair. I had to wash it and blow dry it first. The next day I braided it and haven’t did anything else. My daughter immediately looked at my feet and told me I needed to go somewhere soon. I am going to the Urgent Care that she goes to. I don’t think this is an emergency but I can’t keep wondering what is going on. I need to know something right away.
If I don’t post for a few days or so, it’s because I am getting more rest and my only excercise is going up and down the stairs for water and food if they are sleep of gone somewhere. I would have took a better picture but I need to relax for a minute. I have to get up with my daughter every morning before school. I am exhausted from trying to fix me some breakfast and soaking my feet downstairs in really hot water and Dawn dish washing liquid. They look a little better. Need another pedicure. Hopefully we go early enough this morning so I can get back home and get in the bed. That NordVPN is what was causing all the devices to run slow. I did a test without a VPN and one with a new VPN. The devices worked much better for me. I am using a VPN on all my devices except one which is his laptop. That is how I figured it out. It wasn’t the internet speed so no need to call Customer Service. Just needed to completely uninstall that NordVPN app from everything. I will tell you which VPN I am using now soon as I get a chance.

It really hurts to even move my right ankle. It feels like a strain or like I twisted it which I didn’t do. Because he is at home more now, we fighting over space and the PlayStation. We don’t have to fight about the laptop anymore now that I have the tablet running smoothly. I actually fixed all the devices before I went to sleep. I woke up at 6:30 in the evening. And still felt tired. I think I may need to eat something else because I am still hungry. Maybe he will cook us some bacon and eggs for breakfast if he is feeling okay. He is an insulin diabetic. His sugar has been high the last few days but he does check it regularly which makes me feel better about it. But it also makes him tired sometimes. Depending on what he has been eating or if he really ate at all.

My seven year old daughter is now reading as much of what I write as she can which is good sometimes but bad at others. I realize now that we can’t share a tablet which is why I had to get another one. She bores easily. From the Switch, Netflix, PlayStation 4, and Cordy 2 on the other tablet. This one didn’t come with those stock games which is also good. I managed to take a look outside and there is quite a bit of snow. He said that it snowed all day while I was sleeping. He was right. My feet are going to be really cold in house shoes. I may do what they used to even though it looks tacky. Cover my house shoes with a plastic bag or two so my feet stay warm and don’t get wet. There is no possibility that I can get any other pair of shoes on. It would hurt too much. I have what I am going to wear already picked out. All I need is some food and a quick nap, and I will be ready to go.

  

 

 

Dystonia: Get the Facts on the Syndrome and Treatment

We get most of our information about Dystonia from the Dystonia Medical Research Foundation but this article explains it well. “Syndrome” is correct but I refer to it as a disorder. It is rare and this is general information. I have Myoclonic Dystonia or Myoclunus which is the sudden jerking like movements you see in my videos on YouTube. The link to my channel is in the menu. https://www.medicinenet.com/dystonia/article.htm#