Insomnia or is my sleep schedule off?

Once I started to limit my activity’s, I started sleeping all day and waking up in the middle of the night after everyone else is gone to bed. Not spending as much time with my daughter as I would like but even she knew I either needed to rest or go to Urgent Care. I decided to rest. This is day three or four days of basic bed rest. Luckily her father can make sure I have everything I need up the stairs.

The swelling is almost completely gone at this moment. The more I try to do, the more swelling I have and the pain from just a slight touch is too much for me. I can’t really even touch my own foot and my daughter stepped on it and so did her father. Of course from the sounds I made, they were very apologetic. They were accidentally stepping on it or laying on it. I haven’t really done much elevating for the swelling. I have been doing everything from the bed. It is still swollen from trying to sit up in the daytime. I am going to prop myself up with some pillows and then elevate Saturday and Sunday. I am ready for the game but have no idea what we are cooking. Living with a diabetic and a child with food allergies makes dinner a huge decision since we all need to be on different diets.

My weight is up instead of down for a change. I feel better but I need a lot of stuff to take care of my health properly and it cost money. I am going to take it one day at a time. Since he quit his job, he is home all the time temporarily. He feels better as a person but taking a loss in income at anytime is hard. We got big plans but I don’t want to have to struggle. Even though it would be for a moment. Like we got all this chicken but nobody wants to eat it. Need some more recipes with chicken in them. With him here, the heat turned down and the window be open. The light be on all the time and I can barely get to this Playstation. We are adjusting and luckily he is looking for work instead of just laying around all the time. He basically quit his job when his boss replaced him with his uncle. I don’t blame him but miss the income.

I am back to braiding hair after years of retirement. I only braid my hair and my daughters’. She likes beads, what they call BoBos, and berets. I don’t do beads and if I did, I would need a beading tool that comes with the beads. My hair is already braided thankfully. Her hair is clean but sucks up moisture very quickly. And our hair is growing. Once I wash my hair and add the oils to it, it stays moist. My daughter has eczema and her hair and scalp stays dry. I changed my Twitter profile picture to the hairstyle that I want to try. But by me not using too many products in my hair, I don’t have to wash it every two weeks like I used to which makes things easier for me. I am considering adding some weave to it soon. I want some color and the person who was dying my hair is too busy. I could try to do it myself and let it come out in more than one blended color but I will wait until it gets dirty to do the dye. Plus the dye that I am going to use is a powder which makes it more intimidating. I need a list of all the stuff I need to do it and you can get the list of things you will need from the website. Why powder you ask? Because I want Strawberry Blonde and I couldn’t find that color online when I was shopping except in the powder form. Braiding my daughter hair would be easier if she would let me freestyle but at her age, she wants specific hair styles like I mentioned before. Either way, I don’t have to stand up and braid since she is a kid and I need to get her some hair products from the beauty supply store.

The reason why I was posting so much about the games we are playing was because that is all I have been doing while in the bed. Playing games and writing. I posted a few poems here and noticed that this may be the wrong place to put that kind of poetry. What they call dark and explicit. No one liked the two that I did put up but I know a lot of people that enjoy reading my poems. When I had this site the first time, I posted a lot of poetry. I am working on a book of poems by me that has a warning label on it that says Mature like these games and CD’s do. The book is coming along fine but I haven’t been working on it at all this past week which was a rough one but it went by very fast. I ran out of cigars, right after I ran out of Pepsi. Single income family now basically until further notice and yes I am on him but also giving him some time to rest and think. He is a lot easier to deal with now that he is no longer working for that lady. He is drinking less too. I didn’t realize how bad it was for him until he quit. It was like he was finally able to exhale or something. We got our worries but not that many. These bills need to be paid right away as we all know.

For the new followers of this blog, thank you and please look around the site a bit. There is a lot of missing content but not because we are lazy. Because we have been busy and now we were resting up for today. I do not feel like going anywhere but I have that appointment today and really can’t reschedule it. So while I am out today, I am going to grab something to smoke on for a week or so. I know the doctor is probably going to tell me to take them opioids for the pain in my feet but I would rather smoke which they do and don’t have a problem with. However, my lungs and heart sound good. My thyroid test should be in a few weeks because I will not over book myself this month. That’s probably where the swelling came from. Doing too much running here and there in this cold. And it is not going to warm up anytime soon. It is 10 degrees right now with snow on the ground. I have to figure out how to get my feet into a pair of shoes but they are so sore that I am scared to try on some shoes and walk in them even in my own house. I have two pairs of comfortable shoes but I am taking my house shoes with me just in case. If the doctors are worried about inflammation, they will prescribe something like Motrin or Naproxen. I prescribe myself with small doses of marijuana for this pain. Just need to get up and go. I will be sure to wear my glasses so they can’t tell my eyes are red. Good morning to whoever took time to read this. It’s going to be a busy day for me.

 

 

 

Raising Awareness?

I have been trying to raise Dystonia Awareness but most people are not really interested in learning what it is and how it would affect their health. How many people see the word Dystonia and actually look up the meaning or wonder what it is. Most doctors can not diagnose it and you end up being diagnosed with other illnesses by mistake. I was diagnosed with MS which everyone has heard of but even I can’t remember how to spell it. Probably because I took the shots to treat it for two years and was then told by the Neurologist at the time that I didn’t have it. 7 years later, I am diagnosed with Myoclonic Dystonia and Occasional Tremors. Makes good sense to me. I have less control of my muscles than I did 10 years ago which means whatever I have is progressing along very slow.

I decided not to go to the Urgent Care because of the weather and my ride simply didn’t want to drive in this snow just so they could tell me the same thing the doctor said. Rest and elevate my feet. Watch what I eat and go light on the salt. I am not monitoring my blood pressure yet and I haven’t started any new medications. The soaking brought the swelling down a lot plus not being on my feet today or yesterday. I am not really even supposed to be sitting here typing this because the swelling can be caused by sitting to long. As far as Dystonia Awareness goes, I am raising a bit of awareness everyday but I do take a break from all the medical problems to focus on other things. Like raising my child and keeping our appearances up to the best of my ability.

I am using the laptop right now because he is gone and I only needed to use it for a hour before I play Mortal Kombat XL. I can prop myself up in the bed to play. It is cold with fresh snow on the ground. I don’t have to go to another appointment until Friday so it gives me plenty of time to rest, soak, and elevate through out each day and maybe by the time of my appointment, I can get my feet in them boots. I am the type of person who exercises by doing the stairs all day and I still am but not as much as normal and I am using half my speed making sure that I don’t step the wrong way and fall on the stairs again. I fell and twisted my ankle on the stairs last year and that hurt more than this does. This is more of an uncomfortable feeling and they seem to leave stuff in the walk ways as if they don’t remember that I can trip over it.

I am not focusing on the Dystonia right now because of the constant swelling in my feet, ankles, and part of my legs. It only really hurts when I try to bend the ankles or someone steps on my foot. There is no more swelling anywhere. Not even in my eyes right now. The marijuana helps with the pain and also helps with sleep. Some types work better than others. I am currently using THC instead of CBD for now and I am still using my pipe to smoke it. Such an easy way to do it and helps me dose myself. I am not really a recreational smoker or social. I am learning but I am aware that if it is not grown right or they use chemicals on it, it could have a negative affect on my muscles. It has happened in the past before I started to go get everything from a grower or the dispensary.

Nothing from that dispensary taste good or like it should but they keep the prices low since they are in the neighborhood. I am going somewhere else with better quality than them soon. I am also looking for something to help me sleep or relax the muscles. No more attacks since my last post about them which means that the cannabis is working. If I do have another attack, I know I don’t have to travel far for relief and on a good day, I can go a little bit father away to get better quality. And better tasting clean smoking marijuana. You can not imagine how many people try to sell me something through Twitter but they don’t have real pictures. If I was and I am going to sell something like that to anyone, I would definitely have a picture that is current and that I just didn’t do a Google search to find an image off it to trick someone into buying. So called weed men on Twitter seem to not understand this and they just grab an image off Google and DM you that waste of time picture that I can download myself. I sure hope when doing business on Twitter of this nature that you are being careful because these people are only out to get your money and once they get it, all you can do is complain. After all, they are not really using their real name. Some don’t even have enough sense to hold a conversation with a potential client but they love to spit that game like they can suck the credit card number out your pocket. I just have learned to ignore those DM’s now.

The laptop is more fun to use because of the keyboard. I can also see a lot better what I am typing on here than the new tablet. That AT&T Primetime tablet is really nice. Especially since it was free and you only have to pay $10 a month to have one of your own. It has the speakers on the front instead of the back which is a plus and it takes amazing pictures. The battery life is good fresh out the box and all you do is sign in to your Google account to get all your apps on the new device and then connect it to or discover other devices. It was an easy set up. It came by delivery in a timely manner. I have switched from the laptop to the tablet but I am able to continue where I left off. The prediction of the next word you might type is good and it has auto correct already on it. There really isn’t much that I had to do to set it up and I was able to turn the tablet into a phone just by following the very simple instructions on the screen. I fixed the settings for the keyboard and found what I was looking for. I wish this tablet would automatically put a period at the end of a sentence but my phone can’t even do that. I am using G Board by Google. You can really customize the way it looks and feels when you type. 👍

DYSTONIA ATTACKS

Like a allergic reaction to something you smell or eat, you are not prepared because it is sudden. You can’t prevent a Dystonia Attack and having one is like having an Anxiety Attack. In fact, you can be having both at the same time. The best thing to do is to be prepared. Take your medicine with you when you leave your home. I wasn’t prepared at all. Since I have made some changes to my diet and medication, I haven’t had an attack in months. Once you have your first one which I can remember very well, you know that it can happen again no matter how much better you feel. This does not apply to everyone and some people have had Deep Brain Stimulation done which is a surgery that could eliminate most of or all of your symptoms. You have to qualify for this procedure and I do not qualify yet.

It’s hard to describe what an attack is like. And there are triggers that I have to avoid like stress which is impossible to avoid and loud arguing. Even if I am not the one that is loud. I am diagnosed with a ton of things including Dystonia and Occasional Tremors. Even as I type this, I am experiencing tremors probably from the loud noises in my environment. Noises that I have no control over that bother my ears as well. It makes it hard to concentrate right now and when I had the attack, I had been fine for days. I was just dealing with the tremors. My Dystonia Attack occurred before I could finish my wash day for my hair. I got into a very stressful and heated conversation and my body went haywire. I started to convulse and took a muscle relaxer. It helped slow those sudden movements and the shaking down but it didn’t stop the attack. I still was in the bed sitting and could barely move or talk. My speech was choppy and I was a bit out of breath from shaking like that. Someone suggested I try another type of medicine and at first, I said no. As the minutes passed, I decided I was going to go get some medicine in my pajamas because there was no way I could get dressed. I was way too stiff and in pain. I could only take a few steps at a time. I put on my favorite hoodie and headed towards the door in my house shoes.

Since I am trying to get my Marijuana License and already have my papers, I decided to go to the Dispensary that helped me renew everything. It is close to my house and owned by some friends of ours who also own a few other businesses in the neighborhood. Of course this wasn’t my first time there. It was my first time there again in some years. I thought it was going to look different now than it did back then. It didn’t but they have good, quality products for deals. I couldn’t decide what to get because there was limited options when it came down to strains. I went with what I knew would work, Fruity Pebbles because I smoke it all the time now. I just had ran out the night before I had the attack. I also asked for my free stuff since to him, I was a first time customer. The free stuff can sometimes be worth it depending on where you go. All I got was a free pre-rolled joint of something that wasn’t strong enough and that tasted terrible. But I was mixing it with the pebbles to stretch the pebbles. It worked wonders.

This is not an ad for anything or anyone. This method of natural remedy may not be good for those with Dystonia but it works for me. It is better than drinking or taking a bunch of pills all day long. I try to save the pain meds for emergencies. I don’t want to become addicted to pills like some of my family and friends. Medical Marijuana got me though the rest of the day and I haven’t had anymore attacks since I smoked it. I am not ashamed to say this. I want others to know that you don’t even have to smoke it. You can try the oils, edibles, topical rubs, or the tea like we make. I smoked out of desperation. I didn’t want to be immobile when my daughter got home from school. She noticed how I was walking and asked me what was wrong. I told her my legs hurt and that I needed to go lay down.

I am still recovering from the attack and under a lot of medical care. I have an appointment with the Internal Medicine doctor on Monday to address the swelling in my face, leg, ankles, and feet. Maybe she will be more helpful this time since I told them this was the reason why I was coming back in so soon. I was just there on the 19th of this month for my first appointment with her. My other appointment for Thursday morning went fine but I wasn’t able to see a doctor which made it almost like a waste of time. And it hurts to walk with all this swelling. The other doctor also came to the house like he said he would. He was late but I understand they are very busy. He took a look at my face and the swelling every where else and asked me what did I change or did I start a new medicine. Nope. I have dry mouth and have been drinking a lot more fluids. He said that maybe I was drinking too much and it was washing the electrodes out of my body making me feel weak and fatigued. He suggested I switch to Gatorade like my oldest cousin said. Gatorade 2 which I have never paid any attention to. He also said elevate your feet of course. Too many fluids? I was shocked but not surprised. That is what I was thinking to myself. I am retaining water. I didn’t think it was the amount according to your weight and each person is different. I suffer from dry mouth from the meds I take. Lots of fluids is what a friend suggested for it but others suggest the Biotene gum. Gum does help me with dry mouth and I am going to order some from Amazon when I order my hair products. I will still drink water, but not enough to be swollen up like a balloon. Pepsi is my favorite beverage of course. Going to elevate my feet for real when I lay back down and hope it helps. Decreasing my fluids will be the hardest part.

 

Dystonia: Get the Facts on the Syndrome and Treatment

We get most of our information about Dystonia from the Dystonia Medical Research Foundation but this article explains it well. “Syndrome” is correct but I refer to it as a disorder. It is rare and this is general information. I have Myoclonic Dystonia or Myoclunus which is the sudden jerking like movements you see in my videos on YouTube. The link to my channel is in the menu. https://www.medicinenet.com/dystonia/article.htm#

Not hot enough….

I like to wash my hair in nice warm water but my water isn’t staying hot long enough for me to do what I need to do to my hair. I had the same problem with washing my daughters’ hair and had to use a bottle of warm water to rinse the conditioners out. I forgot and shampooed my hair and by the time it was to rinse the second time, the water was too cold. You know. Warm on the skin but too cold for the scalp. So I got some bigger plastic bottles and warmed me some water up in a tea pot and it was too hot. At this rate, we can take a 30 minute shower which is good but we need a hot water tank like he said. Our water shouldn’t get that cold that fast.

Right now I have washed and used two conditioners. Now I am doing the first deep treatment. I like this Cantu product a lot and it is the only one by them that I use. It’s in the Natural Hair – Products we use section. It has to stay on for thirty minutes but smells so good. If you can’t see the label in that picture, it is called Cantu Shea Butter Deep Treatment Masque which you can get a Family Dollar sometimes. It cost around $9 but will last you a while depending on the lenth of your hair. I cover it with a plastic bag rather than a shower cap because I have so many plastic bags in my house, I might as well make some use of them. Everyone says I am cheap but why go buy some shower caps when the plastic bags do the same thing?

After I rinse the Cantu out, I have added another quick Masque just to make sure my hair is well conditioned and looks healthy. I use Eden Body Works Natural Hair Masque Treatment. It is also a deep conditioner. You leave it on for just 15 minutes unless somebody is in your way. I would say thirty minutes at the most. I also agree that you should never leave any product on your hair for more than an hour. I have done this and the results were terrible. Made it less manageable. Eden Body Works is Paraben and Sulfate free and both products are water based meaning the first ingredient on the label says water (Aqua) and in fact, all the products I use are water based products and 90% all natural. I always look for Paraben and Sulfate free products for my hair that are water based and add moisture not grease or heavy oils. I try to use things that are light on the hair to prevent build up and make whatever I am doing to it last longer.

I have like 10 calls to make this morning mainly for me a my daughters’ appointments. We have a lot. I have one Thursday and one Friday. Not making any more for January. I don’t want to over book and wear myself out. No matter what I do or say, I am still disabled and functioning at half of my abilities. I do my own hair still and will as long as I have the strength. I don’t rely on help from others because I am on a time schedule even though I can no longer work. Best way to put it is that my job now is to make sure I keep, make, and reschedule appointments for my house hold and to go to the doctor regularly. Specifically regarding my eyes and my thyroid. My ankle being swollen is from me doing too much but the eye thing I don’t understand yet and I don’t believe it’s just my allergies. The next time it is swollen I may go to urgent care if I have enough time.

I know these post can get weird on Twitter. Meaning it’s posting while I am on there. That is because I schedule them too. That way I can keep new content here daily. It is easy to add content so through out the day, as I run across new information or find something interesting, I just share it either on here or on Twitter which by the way I still love but I accidentally unfollowed someone. I feel kind of bad but in a way, it’s not like I knew them or anything. I don’t know anyone on Twitter. I just like how fast I can get information about health and the news. I am also on YouTube but only the sick part. I never made a video of me well but I am going to do so after I do my hair. I will add the link to it even though I don’t maintain my YouTube channel. My handle is Twistteddollface. On PS4 I am kushkola313 and BlackWhiskey313 but I don’t really play online. My husband does. I will add all this to the menu too. Contacts are important for business right now and we are running two websites and he is passing out fliers. He ended up smoking and thinking about how his boss was treating him and quit yesterday. We are trying to go into business for ourselves. Self-made. He won’t be sitting here playing the game all day and neither will I. We got too much stuff to do. Generate more money until he can find a better job or continue doing what he does best. Drive and grow. Making plans for a garden but we have a Pitbull in the yard. I hate when they pee on the fruits and vegetables.

In my window in the kitchen has enough room to start growing some herbs. I used to put the little baby plants there because of the sunlight. They did good. Mine. The ones I got from someone else must have gotten stressed and they did very poor with that amount of sun and water I was giving them. My cousin is growing some of everything but lost her plants because the Christmas tree was blocking the light. The ones she got left I can get a piece of and finish rooting them in water before we plant them in the dirt. We are also looking into edibles. I get quite a few good recipes from Leafly that I haven’t tried yet. Cookies are okay. Ribs would be a lot better. I did a Pepsi rib that actually tasted like Pepsi because it was marinated overnight. So tender.

I am using the phone to post today because everyone is sleep. I didn’t smoke before I went to bed and woke up cold because someone decided it was too hot and opened the window. Yes it is warmer outside for now but not so warm that you need to open your windows yet. I have on my hoodie again for this reason. His blood pressure must stay high or he just like cold air when he sleeps. I know it makes me stiff so if I can’t move, it’s his fault. And he is going to have to get me something to relax my muscles and get rid of these aches and pains. Shop opens early so I should be fine. Hot water is better now. It could be because it hadn’t been used all night. I don’t know but I do know that I need to start pricing hot water tanks. We are going to need one right away.

Strawberries for breakfast today

https://www.organicfacts.net/health-benefits/fruit/strawberries.html

This article explains the health benefits of strawberries which I just bought some of. If you know about my eyes from reading previous post, you know that anything I can do naturally to help them is worth a shot. Cucumber with tomatoes and cheese is for lunch if we have some ranch dressing.